Archive for November 5th, 2008

Day 21 11/5/08

     For the second night in a row, I got very little sleep, about 5 1/2 hours, and this time it hit me right between the eyes. I was staggering around today as if I had had no improvement at all. It’s amazing how much sleep, or lack thereof, affects ataxia. Tonight, I will get my beauty rest. Jason took one look at me in PT and tried to send me “home”. No way. I sweated it out. I didn’t do whatI I usually can, but I still busted my butt. I’m convinced that the harder you work in therapy, the better it is for the stems.

     Jason felt so sorry for me that he sent his associate to my room for acupuncture and electrowave. I don’t know if it was the od.of voltage yesterday, or my belief that the more I take, the better, but today I noticed the skin on my legs where the pads go is peeling, like a bad sunburn. Maybe I ought to take it easy on that.

     Jack took me to the computer store after that, and sure enough, they couldn’t fix it. But a new keyboard bypassed the problem. He said I paid too much and tried to talk the salesguy down. No deal.  But the price was 40 RMB, about $6.  When I told him it would cost 5 times that in the States, he was stunned.  He told me that they even bargain with cabbies.  I can just see trying that in NYC.  My new keyboard seems to be supplying different fonts, but I don’t care.  I get to write on my computer when I want, and not wait for the kids to stop playing games on the ones in the common room..

     Tomorrow, my Canadian friends, Rena, Richard, Dawn and little Jacob are leaving, and I’m happy for them, but I’ll miss them.  And Clint and his son Luke leave Friday.  But I’ve made new friends,  Dani and her beautiful daughter, Jessica, from New Zealand by way of Australia; and Debbie, her mom, and her beauiful daughter, Kitty, from London by way of South Africa.  And Jim and his wife are still here, as well as Cindy and her son, Xavier, who calls me Uncle Mike, from Florida and my pretty Sophia and her folks from Venezuela by way of Canada.

     Yesterday, I found out from Jon Hakim that Beike’s Bone Marrow Transplant Dr. is coming here Monday, and he’s excellent at spinals. Today, I e-mailed him and asked if I could have my 3 remaining treatments next week, with that Doctor.  I know that that would be a little close together, but I hope they can do it.

     Election day “today” at home,and Obama won!  Great news for the USA.

     Only 10 days to go, boy do I miss my wife and kids.

5 comments November 5th, 2008

Day 20 11/4/08

     Didn’t sleep very well last night.  Made for a very long day.  That and a few things going kablooey.  I am writing tonight on one of the hospital computers, because I spilled diet coke on my keyboard.  It didn’t seem to do too much damage, but writing this without using “b” or “n” would be somewhat of a challenge. Since I don’t know where to get it fixed (the place I went to to fix the DVD didn’t) I’ll have to buy a keyboard.  Hopefully I can find one in English, since writing this in Chinese would also be somewhat of a challenge. 
     Then my Palm Pilot (yeah, I know they don’t call them that anymore) froze.  I was able to do a restart, but now I have a blank Palm Pilot, which I can’t synch, since that’s the other thing wrong with my computer.  It’s not like I have that much of a schedule here, but now I can’t play any of the games.
     Then I had a meeting with the doctors, who told me that I must have misunderstood about the short needle, and that they would try to do a spinal, but there were no guarantees. 
     Finally, one thing did go right, I think.  I met Jonathan Hakim, COO of Beike, who was very responsive to my misgivings, and said that they DID use short needles here.  He also said that he would look in to the situation, and try to rectify it. I certainly hope he does.
     Other then that, PT went poorly due to my lack of sleep, and I almost got electrocuted when they set the electrowave machine on well done.
     I think all of these things bothered me more than they should have because I really have had enough, and I’m ready to go home.  But I still should have stayed in bed.  It’s 1:30, thats where I’m heading now.

1 comment November 5th, 2008


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