Comments for Nanna's ONH Blog

Comment on Update… by Daniel Sieradzki

Daniel Sieradzki — Wed, 19 Jan 2011 18:31:41 +0000

Hallo June, Hallo Nenna,
wäre es möglich das Ihr ein kleines Update in Deutsch oder Englisch verfasst, denn mich interessiert es doch sehr wie sich Nenna´s Gesundsheitszustand im letzten Jahr verändert hat.

Leider ist mein Dänisch nicht besonders gut:)

Ich hoffe euch geht es gut. Ich wünsche Nenna natürlich größt- und bestmögliche Fortschritte bei der Sehkraft.

Liebe gruß aus Deutschland.

Daniel

Comment on Nanna’s private cable railway – being Madrisafee (Madrisafairy) by jose trives Trives Bordon

jose trives Trives Bordon — Sun, 28 Nov 2010 13:32:16 +0000

I am writing to you asking for advice and information and
I am very interested in treating the Beike
condition that I suffer (ATAXIA). I wanted to ask
IF YOU HAVE TREATMENT worth it, and I ask
I report on all aspects
Beik, before making an important decision.
many thanks.
Juan Jose Bordon Trives carefully.
Spain.

Comment on Endelig nyt!! by Marie Young

Marie Young — Sun, 28 Nov 2010 12:48:20 +0000

Dear Nanna and June
I am the aunt of a little boy Philip, who was born with the same symptoms as Nanna. I have now watched your video from stemcell treatment, and I know it is something my sister Ditte is considering. I am so glad to see how well Nanna is doing and I am looking forward to follow her deelopment througout her teens.
I send my love and regards to you June. I know it hasn´t been easy and you have probably felt alone a lot.. I just hope you have good friends and family around you to support you.
Best regards
Marie Young

Comment on Endelig nyt!! by Ditte Young

Ditte Young — Sat, 27 Nov 2010 10:51:38 +0000

Kære Nanna, Emma og June.

Jeg er mor til Philip på 2 1/2 år, som lider af ONH.
Vi bor i Danmark.

Jeg ved, at hans synsnerver ikke er færdigdannede og han
i dag har en synsbrøk på 6/48, hvis det siger jer noget..;0)

Jeg har set videoklippet af jer fra Kina og blevet meget berørt
over at se hvad I har gennemgået. Det glæder mig helt enormt
at læse, at der er positiv fremgang i dit syn Nanna.

Jeg blev overrasket over at finde ud af, at I besøger
Danmark engang imellem. Jeg har ikke kunne finde andre
børn, som har gennemgået behandlingen i nærheden
af Danmark. Philips far har mailet med Macie Morse for et
års tid siden.

Jeg skriver til Jer, fordi jeg gerne vil i kontakt med Jer.
Hvordan er Nannas fremgang i dag?
Hvordan var det at være afsted?
Har I nogen erfaring med stamcellebehandlingerne i Tyskland?
Dét at tage afsted til Qingdao igen næste år?
- Ja jeg har mange spørgsmål…;0) –

I må meget gerne kontakte mig på:
ditteyoung@gmail.com eller
Tlf. +45 27 29 03 03

De kærligste hilsener

Ditte Young

Comment on MERRY X-MAS!! by Josephine Rich

Josephine Rich — Tue, 10 Aug 2010 16:39:11 +0000

I sincerely wish you the very best with your treatment and every happiness in your lives. I know it`s such a hard struggle. My grandson has optic nerve hypoplasia and is blind in one eye but can see with the other. He also has ADHD which can cause a lot of problems and a lot of stress. He will be 20 at the end of this month. All the very best of luck.
Regards
Josephine Rich

Comment on MERRY X-MAS!! by nanna

nanna — Tue, 15 Jun 2010 20:13:57 +0000

Hi Mia and Noah!!
Sorry about this late answer, but we had a lot going on here the last 6 months!! We are very glad to hear that you are doing so well!! Are you going to go to China this summer?? We won’t because of familystuff, but we hope to get back to Qingdao next year!!! Nanna is doing good, no miracle, but she sees more.
Let us know how the 2 of you are doing!!
Big hugs
Nanna and June

Comment on MERRY X-MAS!! by nanna

nanna — Tue, 15 Jun 2010 20:08:05 +0000

Tak kaere Lotte!!
Nu haaber vi saa vi snart faar noget af al den lykke. Vi er i Danmark i August igen. Kan vi ses?????
Knus Nanna og June

Comment on MERRY X-MAS!! by Lotte Nielsen

Lotte Nielsen — Sat, 06 Feb 2010 15:36:32 +0000

Hej Nanna og June
I ønskes et lykkebringende årti og hvor er det fantastisk med med Nannas CD.
Knus Lotte Frederiksberg

Comment on MERRY X-MAS!! by Mia Ruthey

Mia Ruthey — Mon, 11 Jan 2010 16:35:46 +0000

Hi June and Nanna!

I hope this post finds you well and Nanna doing better. I hope you are feeling better too, June! You broke your back? Ouch! Anyway i wanted to let you know that we think about you guys and hope that Nanna continues to improve. I am trying to get back to China again this summer so i can sustain the improvements that i have had. My speech is so much better and not so much fatigue- so much more enegy which makes life easier. Still using my cane but i can tell my legs are better and so is my attitude. Drop me a note when you get a chance! We are the Americans that made you show us your beautiful Switzerland online- I’ll say it again- you live in a postcard.
Give my love to Nanna!
Mia and Noah Ruthey Moline, ILLINOIS USA

Comment on Wenn es mal länger dauert…. by Kathi Mitchell

Kathi Mitchell — Wed, 18 Nov 2009 19:45:30 +0000

Sorry that you were involved in an accident. Hope that your healing process has been great thus far. We are starting to get cold weather here in Louisiana but not too cold just yet. Colder than normal though for this time of year. Get well soon. Give nanna and emma hugs from me!