Hi everyone. One more over. They took two times again to put in Ollies Dripline. MostIy due too Ollies spasticity not the nurses fault however I feel so helpless watching them upset my baby so much every single time. Once Ollie was wheeled out of the theatre his beautiful eyes were searching the room full of Chinese People looking anxiously for mummy. Once he found me he gave me the cutest relieved smile that I will never forget. He is so delicious and brave and does not even know it.
His bowel infection has finally seemed to settle this morning. This has been what has caused him so much distress. The spasums wake him up every five min or so causing him to be constantly tired. He has had a bit of sleep last night after his injection of stem cells yesterday.
I had to have him sedated once we got back to the room because he does not liike lying flat on his back which he has to do for six hours without moving his head.
He was woken up by a mother who was running around the hall way screaming with her kids -knowing it was treatment day for a lot of people (just not her kid). I discovered her doing this when I opened my door with a look of distress on my face, which she must of taken as anger. A few min later I received a nasty letter under my door. Can you believe that! I didn’t even say anything. All I can say is I am taking this very seriously the only noise Ollie makes is crying in discomfort!
Anyway today Ollie is happy and in no pain so that is all I care about.
Next treatment is on Friday @1.30pm.