Hi everyone. One more over. They took two times again to put in Ollies Dripline. MostIy due too Ollies spasticity not the nurses fault however I feel so helpless watching them upset my baby so much every single time. Once Ollie was wheeled out of the theatre his beautiful eyes were searching the room full of Chinese People looking anxiously for mummy. Once he found me he gave me the cutest relieved smile that I will never forget. He is so delicious and brave and does not even know it.
His bowel infection has finally seemed to settle this morning. This has been what has caused him so much distress. The spasums wake him up every five min or so causing him to be constantly tired. He has had a bit of sleep last night after his injection of stem cells yesterday.
I had to have him sedated once we got back to the room because he does not liike lying flat on his back which he has to do for six hours without moving his head.
He was woken up by a mother who was running around the hall way screaming with her kids -knowing it was treatment day for a lot of people (just not her kid). I discovered her doing this when I opened my door with a look of distress on my face, which she must of taken as anger. A few min later I received a nasty letter under my door. Can you believe that! I didn’t even say anything. All I can say is I am taking this very seriously the only noise Ollie makes is crying in discomfort!
Anyway today Ollie is happy and in no pain so that is all I care about.
Next treatment is on Friday @1.30pm.
Sounds like that woman has got a chip on her shoulder. Give her a punch in the mouth from me, that shoul shut her up. Naa just joking, its great that he is comfortable baby. I hope you guys can have some time to unwind a bit before Friday comes around. I love you both.Cant stop thinking of you.
Hi Natalie and Ollie,
You have been on my thoughts often and I am happy to hear that you are safe and sound and full of optimism! I wanted to wish you both a very merry christmas! I am sure that santa will find Ollie in China and hope that he finds you too Natalie! Sending lots of love and good wishes!
Holly
Aww Nat,
Some peolpe have no consideration and thoughts but for thier own.
We are so proud of you guys over there. My heart leaps for you everytime something good happens (no matter how small) and I cry for you when you describe how distressing it is. I know from when my boys were in NICU all that time when they were born how helpless you feel. But rest assured that the best medicine Ollie can have right now is his Mum and all her wonderful love and smiles.
Chin Up Nat, Its not just Ollie who is brave – More Power To You. You ROCK Big Time Sister!!!!
Cant wait for more updates (although I will need to buy more tissues first ~ it appears high and low news sets me off).
All our love, thoughts and wishes – The Kilby Family
Hey you guys, we are all thinking of you in the land of Facebook. Keep up the good work. Sounds like you’ve got it all together Nat, you are a very special person. Merry Christmas to you all… fingers crossed for great news to come and an awesome year ahead. Stay strong and positive. Colette and Jesse xoxox
Hi Nat and Ollie
How inconsiderate of that women, snot her one!!!!!LOL!!!!!!
What a brave little champ you have Nat. You are doing a wonderful job and you too surely are a brave one.
Wishing you a merry xmas and santa will be sure to find Ollie in China.
Our thoughts are with the both of you.
Keep the chin up Nat!! We are all there with you and Ollie in spirit, wishing you guys all the luck and love in the world. Stay strong, I’m with Nat and all I do is cry when I read how you are doing, you are much stronger than I would be!! Love you lots Nicole.
Hi Natalie and Ollie,
It’s been great to follow your amazing journey and roller coaster ride. All here at the CDU are thinking of you both.
Great to hear of some gains already. What a colossal result from a colossal pair of Aussie fighters.
Wishing you a merry Christmas. Looking forward to seeing you on your return to Cairns.
Rosie
Hey Nat, Just letting you no we are all thinking of you and i no your lonely over there but im sure you no how much its for a good cause you keep your chin up mate……..and ollie what a battler its great hey….you guys rock
Cheers
Kezz