Comments for Ollie's Spastic Quadriplegia Blog

Comment on Ollie Ollie Ollie- Oi Oi Oi by marius

marius — Mon, 12 Jul 2010 21:39:38 +0000

Hello. We read your story online about your boy. We are very happy that you as things are going okay. We also plan to travel to China and would like your advice. What do you recommend to us. our girl is 4 year old and she is still not walk on their own. We have tried everything and all sorts of therapies and treatment with all kinds of ways. left only one hope of stem cells. We want your advice. all the best for you.

Comment on Its been 6 months! by CP Social

CP Social — Wed, 17 Feb 2010 09:01:38 +0000

Dear Ollie

There is a new CP website http://www.CerebralPalsySocial.org and I suspect you will probably want to know about it. It’s for people who cope with cerebral palsy directly or indirectly, on a daily basis.

So what can I say about it. It pays to have a look because you’ll see we’ve taken our first steps and now want to increase membership to make it more useful for all who use it.

You are invited to open a blog, use the bookmark function, start polling, open a group or join an existing group, connect your Twitter or FriendFeed to your profile, and the options are growing all the time. Most of all, you can stay in touch with your friends and make new ones!

So, stay well and stay in touch.

The CerebralPalsySocial.org team

Comment on Its been 6 months! by christian

christian — Mon, 21 Dec 2009 08:30:42 +0000

Hi,
Christian also has CP but type spastic diaplegia. We had the same relux problem with him since he was a baby. Got no sleep! After the Lap Nissin procedure where they fix the valve laproscopicly he is a different child. He sleeps and eat extremely well with no problems
Just find a good surgeon that has good experience with the procedure.

Good Luck!

Comment on We made it home. by keegan

keegan — Wed, 27 May 2009 01:49:55 +0000

Hi Nat,
Never heard how Ollie was doing since you guys got home. Would love an update. Hope things are going well.
Quinn, Kerry, Keegan, Dawson, & Ethan

Comment on We made it home. by Yehoshua Eliyahu

Yehoshua Eliyahu — Thu, 19 Feb 2009 19:54:43 +0000

Hey, i’m very happy for all of you, and i need your advice.
I have a child with unbelivebly similar case as Ollie,
and i’m looking for information about the stem cells treatment.

I would like to speak to you, please response by email.

eliyahu2203@hotmail.com

thanks,
Yehoshua Eliyahu.

Comment on We made it home. by Tanya Jackson

Tanya Jackson — Fri, 02 Jan 2009 22:04:06 +0000

l’m so happy for u and ur family. sounds like things are going in the right direction for ollie. i hope this improvement is steady and keeps going. all the best and it’s good to be able to look up the progress made by this little champ of champs….

Comment on We have done it! by Jon

Jon — Mon, 29 Dec 2008 10:47:54 +0000

This is Jon and I work with Beike. I just wanted to make a quick comment that it is nerve growth factor not growth hormone that Beike uses alongside the stem cells. Thank you.

Comment on We made it home. by Cliff and Kaye

Cliff and Kaye — Sun, 28 Dec 2008 02:51:04 +0000

Glad you are both safely back home.Great to hear of Ollies sucesses and hope this is the start of many more.
Love to all big hug to Nat. Hugs are good
Kaye and Cliff

Comment on Ollies new friends by keegan

keegan — Sun, 28 Dec 2008 01:25:23 +0000

Keegan, Dawson & Ethan Miss you ollie !! May god be with you on your continued journey…We know you will make it through

The Boys

Comment on Merry Christmas We are coming home! by keegan

keegan — Fri, 26 Dec 2008 01:16:09 +0000

Natalie,
We wish you the best for your beautiful boy. Hope that your trip home was uneventful. It was a pleasure to have been able to watch the miracle in Ollie. He is such an amazing boy with an amazing mom. Love to all,
Kerry, Quinn, Dawson, Ethan, and Keegan
Please keep in touch Our e-mail is moulesong5@yahoo.com