Hi Jane, first I want to wish to your little son: Good Luck and hope all the problems to be solved.
I am the mother of a little girl of 7 years old with CP – spastic tetraparesys and we are going to go in China on Sept.06;
That is why I am very scared about this treatment and I want to ask you, if you are so kind and have enough time, some questions: how is the procedure for spinal injection and IV line; how long it takes? it is allowed the parents stay with the child during spinal and IV injections? what effects has the child (vomita, headache…)?
I am interested also if you stay in a room in hospital (and you have enough space for you, your husband and the child) or to a hotel (which one)…
Also about food: my daughter eat only passed food and for these I have to cook vegetables and meat…are there in the market/supermarket fresh vegetables (little pumpkin, cauliflower, carrots, potatos…) or fresh meat (chicken specially). What about cheese?
I know all these amswers are so tiresome for you, but please understand me and please try when you have time, to send me an answer.
Hi there, how lovely to see Jack in these photos. Apologies but not managed to read all your blogs as I write this but I will do when I\’m not so exhausted! Just found out about the website a couple of days ago from Karen. I have been thinking of you all often and hope you\’re holding up ok – as you say, you\’re just ready for home now. I cant imagine what it must have been like for you and of course for Jack – bless his heart, we\’d all take it away from him if we could! Hope Matt\’s ok and has coped ok without you, I know how concerned he was about being without you all. I bet you cant wait to see him. I\’m home in a week or so – will hopefully get chance to see you. I\’m fine, settling in but not \’doing LA\’ yet – I could be in Barton on a hot day for all I\’ve seen. Been working far too hard! Hope you get this, you\’re probably home by now but just wanted you to know that you\’re all in my thoughts often. If there\’s any improvement for Jack then every moment will have been worth it. If not, god forbid, then at least you tried and that\’s all a parent can do – you gave him the best chance. Hope doesn\’t come close though to what we all want for him. You take care and enjoy being home. Big hugs, Donna xx
2 Comments Add your own
1. Catalina Toma | August 7th, 2007 at 3:09 pm
Hi Jane, first I want to wish to your little son: Good Luck and hope all the problems to be solved.
I am the mother of a little girl of 7 years old with CP – spastic tetraparesys and we are going to go in China on Sept.06;
That is why I am very scared about this treatment and I want to ask you, if you are so kind and have enough time, some questions: how is the procedure for spinal injection and IV line; how long it takes? it is allowed the parents stay with the child during spinal and IV injections? what effects has the child (vomita, headache…)?
I am interested also if you stay in a room in hospital (and you have enough space for you, your husband and the child) or to a hotel (which one)…
Also about food: my daughter eat only passed food and for these I have to cook vegetables and meat…are there in the market/supermarket fresh vegetables (little pumpkin, cauliflower, carrots, potatos…) or fresh meat (chicken specially). What about cheese?
I know all these amswers are so tiresome for you, but please understand me and please try when you have time, to send me an answer.
manny health for your son!
Catalina
2. Donna Regan | August 10th, 2007 at 12:08 pm
Hi there, how lovely to see Jack in these photos. Apologies but not managed to read all your blogs as I write this but I will do when I\’m not so exhausted! Just found out about the website a couple of days ago from Karen. I have been thinking of you all often and hope you\’re holding up ok – as you say, you\’re just ready for home now. I cant imagine what it must have been like for you and of course for Jack – bless his heart, we\’d all take it away from him if we could! Hope Matt\’s ok and has coped ok without you, I know how concerned he was about being without you all. I bet you cant wait to see him. I\’m home in a week or so – will hopefully get chance to see you. I\’m fine, settling in but not \’doing LA\’ yet – I could be in Barton on a hot day for all I\’ve seen. Been working far too hard! Hope you get this, you\’re probably home by now but just wanted you to know that you\’re all in my thoughts often. If there\’s any improvement for Jack then every moment will have been worth it. If not, god forbid, then at least you tried and that\’s all a parent can do – you gave him the best chance. Hope doesn\’t come close though to what we all want for him. You take care and enjoy being home. Big hugs, Donna xx
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