Add comment March 6th, 2008
Archive for March, 2008
7 months after Stem Cells
Hi
It’s been ages since I’ve written on the blog. I was hoping to be able to write that Jack has had improvements but after 7 months I’m sure that he has not.
Socially he has got a lot better but I think that this is due to the fact that he is full time at school and meets lots of different people. He eats a little better and is more relaxed most of the time with no overbiting on the spoon, but again he was showing improvements in this before going to China. His teacher from last years class seems to think that he has more range and control over his arms/hands but I can’t see it at home. Maybe I was expecting/hoping for bigger improvements and can’t see the small ones- I don’t know -but I can’t give credit to the stem cells if I’m not convinced!! I don’t know if we will give it another go in the future, Jack may respond totally differently to the treatment in a few years or perhaps we could try cultivating his own stem cells in Bejing, but you have to be there for longer!!
Anyway, he’s doing well at school using his yes and no cards to communicate and switches so far. He loves going to school on the school bus which collects him at 8:15am and we had no problems with waving him off from home when he started. He just loves all the attention he gets from the other kids, all older than him. He’s got his supported walker at school now so he can get down to his friends level at playtime.
At home I’m still struggling to give him an hours exercise every day. Hes had some botox in his legs 4 weeks ago which has made a difference to the tightness of his muscles in his right leg. This leg sweeps inwards causing the top of his leg to start to come away from his hip socket. We are trying to correct this with his posture and stretches.
Christmas he enjoyed more than ever this year. I made a big thing about it for weeks and he was really excited christmas day, though it took for ever to unwrap his presents because he wanted to try grab the paper and pull (with our help) every bit of paper!!
Best wishes to everyone
Jane
Add comment March 6th, 2008
