Rachel’s Ataxia Treatment Blog

garry5 comments arrive

YES

I AM HERE TO TELL YOU THAT I (YES ME) WORKED OUT WHERE THE COMMENTS WERE HIDING.

i was that impressed with the effort i went and got myself a beer while they downloaded.

rachel will be thrilled to get all your feedback.

yours in suspect litreature

garry

3 comments January 8th, 2007

garry5

good evening folks

rachel just finishing up having her third stem cell via IV (much less painful than spinal). we still have not been able to read anones comments on the blog site so are having a fellow here look at it for us.

rachel was walked down to a massage parlour at lunch time by 2 girls from the office to have a foot massage (more like whole leg) to see if shr can free up her feet like they have been able to free up her hands in the rehab at the hospital. we are also hoping that it may take some of the pain away from when she walks. the session went for 70 minutes and cost approx $4.

comments from some of the staff say rach is walking more securely with less gait (sideways movement) and a bit quicker, i would agree with this. the treatment has done nothing for her sleeping patterns, still hopeless (if she was a better sleeper at night i am sure she would have more energy which is a real frustration for her).

Actually, rach must be getting some results because she use a local chinese toilet today (there is no bowl to sit on) by herself (you bring your own toilet paper only if you think you need it). prioir to today she would not contemplate such a feat. Jon mentiioned to us last week that many chinese have not seen the toilet systems that we are used to. when they come across one they stand on the bowl with their feet/shoes (strides around the ankles i guess) and use the toilet. (don’t feel guilty trying to picture this, it cracks me up every time),this would explain the footprints rach found on the toilet bowl when she went at Macdonalds the other day.

(i will get into trouble for that paragraph)

one of the other patients here(jim, who is a dependant quadraplegic from the US) moved one of his arms today for the first time in 20 years. this result has the spirits at a good level here this afternoon.

garry

1 comment January 8th, 2007