January 15th, 2007
I am really tired today and my therapy sessions weren’t as great as I was hoping after my second spinal injection. I could only stand on one leg for about 3 or 4 seconds and I still had a lot of trouble with the stairs. I did however walk, without hanging onto anything, on the treadmill for 700m in 9 minutes.
I did have a headache after the lumbar puncture but this information goes by the wayside when Garry is reporting in (he tends to get a little sidetracked as to why we are here). My spine hurt ever time I took a step, coughed, sneezed or laughed but it is easing today. It will no doubt feel fine by Wednesday when I have my next spinal treatment.
After all the walking on the weekend both my ankles are hurting a lot because of the arthritis. I was hoping to reduce some of my arthritis medication especially the painkillers. I am still hopeful that the stem cells will relieve the pain from this crippling disease. The special Chinese Massage and OT has certainly helped my wrists and fingers.
I managed to stay on my feet the whole day on Saturday and this is quite an achievement considering the amount of arm pulling and stepping in front of me at the train station shopping centre. I even managed to buy a few things for myself despite Garry’s questions that had to be answered first. Do you reallly need it? Will you use it more than once? Will it fit in the suitcase? AS IF I NEEDED HIS PERMISSION ANYWAY!
It’s not what you spend, it is what you save!!!
Entry Filed under: ataxia
3 Comments Add your own
1. Kim Poor | January 16th, 2007 at 4:43 am
Rachal, You’ll need to get IV injections to help any with the arthritis. Spinal injections stay within the spine and brain and can’t get out. Just the opposite for IV because of the blood-brain barrier. Spinals are best for ataxia.
Mondays are always hard. Don’t let it get you down. if you can even stand at all on one foot, you’re doing great!
Kim Poor
2. steph & Craig | January 16th, 2007 at 11:53 am
Dear Rach
You are on the downhill run with your time in China. Reading your blogs every day we know how hard you are working. You really are an inspiration to me that it brings tears to my eyes when I think of you. not every one has your strength & determination rachel. Keep going.
Tom Price rang Jack Lane for his birthday which was very exciting for all of us. The boys sound fine.
Will stay in touch, love ya heaps
Steph & Pricey
3. DENISE | January 16th, 2007 at 3:42 pm
RACH & GARY KEEP UP THE GOOD WORK . LOVE READING DAILY YOUR PROGRESS WON’T BE LONG NOW AND YOU WILL BE HOME. STILL VERY DRY HERE HAD A SHOWER OF RAIN THIS AFTERNOON BUT DID NO GOOD TO ANYONE AS IT WASN’T ENOUGHT.WILL CHECK IN TOMORROW . BRUCE WAS IN THE SHOP THE OTHER DAY HE SEEMS A LOT HAPPER I THINK HE HAS STOPPED WORRYING NOW.WAIT TO HERE FROM YOU TOMORROW LOVE DENISE
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