Happpy Birthday Millie
January 25th, 2007
Today one of my nieces who also happens to be my Goddaughter turned two! So Happy Birthday Princess. I had my worst homesick day yet today. Dr Yung (head of the program, who has performed two of my spinal injections) suggested that my improvements have been so great I would benefit from another month of treatment. I burst out crying and said no way I have to go home to my boys. He didn’t quite understand the significance of my 5 year old starting kindergarten and my need to be there. Of course, Garry says ‘and who is going to pay for another month’ with all the hand gestures. Anyone who knows Garry would be able to imagine the exagggerated hand movements. Someone later in the morning asked if I had a cold and Garry replied so compassionately ‘no, she is having a sulk day’.
After a strenous physical therapy session in which I walked 1km in under 10 minutes, (hands free) Garry and George went for a cut throat shave at the barbers. The chinese barber started to shave George dry. The guys soon protested. By the end of Garry’s his knuckles were white and said he would never do that again.
The voice machine works by giving your throat muscles small electric shocks to wake them up, I guess. Anyway, the machine can be turned up or down depending on the level of stimulation that your throat can handle. George and I have been having competitions to see who could get it to the highest level. He actually maxed the machine out a few days ago but I did today too. I’m not sure if it’s the machine or the stem cells or a combination of both but people have commented on that my speech is now not as slow and the slurring is a little better. Maybe now people won’t think I’m drunk in the middle of the day.
Tomorrow is my last stem cell treatment. It will be through an IV hopefully I will be ‘pumped up’ and have heaps and heaps of energy for the trip home.
Entry Filed under: ataxia
4 Comments Add your own
1. steph & Craig | January 25th, 2007 at 7:45 pm
Dear Rach
Nearly finished & I know you can’t wait to get home to see the boys. You have done so well. Tell Laney to pull his head in & behave himself. All jokes aside Laney is so proud of you Rach & I know he admires your strength as much as we do. It sounds like you have been thru a life changing experience & gained as much as you have given. Have a safe trip home & we will talk soon.
Love Pricey & Steph
2. Patrick Lane | January 26th, 2007 at 6:41 am
Hi Rach,
take Care and have a safe trip home, we are all thinking of you and the milestone you have made.
Love to you both,
Michelle, Pat and kids
3. Lauraine | January 26th, 2007 at 6:49 am
Rachel Have just been down & turned on the aircon, opened up some blinds. Turned on the fridg yesterday to give it some time to cool. Russel was going mad with me being in the house – perhaps he thought I was there to stay. Had to call in the plumber again last night – one of your bodgie joins Gary – had water everywhere at the side of the garage. I’ve been told the rates are $65/hour and $1 a kilometre for the plumber. Jim left the water off overnight as we weren’t sure how long the well might need to recover – anyway all is back on again today – hope that was all okay. Hope the IV today sets you up for your trip home Rachel – I know how much Millie’s birthday would have made you even more homesick but only a couple of days to go and you’ll be back to the usual grind. Looking forward to hearing all about it in person
Lauraine
4. kelly | January 26th, 2007 at 5:12 pm
Millie thanks you for her b’day message she had a great day all she asked for was a milkshake & “chippies,nuggets,nuggets,chippies” which of course she got oh & cake. I really wish I could bring the boys over & money to pay for another month it sounds like it would be worth it but I know you will keep working hard at home. its Australia Day 2day & mum & dad have taken the boys home which I’m sure they are glad for. I’m really excited with the improvement & hope its all uphill from here. You are so strong, I’m very proud. love ya c u soon. kel
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