Archive for July 23rd, 2008

Day 6 & ‘the party’

My first treatment today was wave therapy (nerve stimulation) followed by accupuncture and electrical stimulation. In the afternoon, I had physical therapy with Andy. That was an experience; but nothing compared to the half hour I spent in the standing frame ( to stretch my legs with my bare feet in a 45 degree position of dorsi-flexion). It was nearly the longest half hour I have spent!

Late that afternoon, the staff of the 20th floor and two Romanian families who were leaving the next day, hosted a party for the patients and staff. Lorenzo and Corino spent most of the day preparing delicious food. Their little girl Laura was here being treated. The other couple, Catalin & Zenovia (and their friend Adrian) prepared two short movies about Romania. The evening was great fun and a really effective way of getting everyone together and talking. At the moment there are people here from Romania, the USA, Canada, Ireland and Australia).

That night, Iwent to bed relative early as I was tired from all the activities but awoke in incredible pain at 3am…I don’t know f it was the muscle stretching giving me fascial pain or because some sleepy old nerves were angry at being woken! A couple of Advil tablets did the trick and I drifted off to sleep again.

Add comment July 23rd, 2008

Day 5

Today started with a doctor’s round and then accupuncture. I must say I find the latter most relaxing…a mood to be broken this afternoon when I have my first stem cell infusion by lumbar puncture.

I was very nervous when going into the transfusion room. I had an I.V.I. insitu so I received a small dose of intravenous valium. It was not  too bad at all. I returned to my room and lay flat for a little more than 6 hours. When I got up I had a very slight headace but otherwise I felt fine. I found that after two hours sitting with my legs in the dependent position that their colour remained good (rather than the blotchy, mottled colour they would otherwise be). My right hand was also straighter. So far so good! I also has a good night’s sleep (a normal trait).

Add comment July 23rd, 2008


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