Home sweet home
Arrived home Monday night very tired but thrilled to be back in the U.K. Lily was so excited to see me and Rohan at the airport. I couldn’t believe how much she had changed in just a month. She seemed so much older and I couldn’t believe how many new words she had. I was worried that she would be very clingly when I returned but she went to nursery on Tuesday with no problems. I was so ecstatic to leave the hospital but it was emotional as it had been my safety blanket for a month as everybody else there were in the same field. I didn’t have to justify or explain to people why Rohan was the way he was as it was just understood that he had some brain injury. I find it difficult when people ask me how old Rohan is as you can tell that they are thinking that his development is severely delayed. I find myself avoiding eye contact with people in case they question me about him. I am sure that this will get better with time as at the moment I feel that I don’t want people to feel sorry for me or maybe it’s the fact that I am still a little in denial about his condition and when I verbalize it, it seems just too real. I am really happy with the progress that Rohan made in just a month but his seizures have increased since having the stem cells. Before the therapy he was having maybe one a day at the most and now it’s between six and ten. I am not over concerned about this as the Doctor’s did warn me that this would happen and that it is in fact a good sign as it shows that the stem cells are having already some affect on the brain. They told me that his seizures will increase for around two months, get to a peak and then slowly decrease. Also, we should be able to slowly wean him off the anticonvulsant drugs which would be fantastic as they make me so drowsy which is also effecting his development. So now it’s back to reality with a very busy schedule of appointments, physiotherapy and speech therapy. It will take around 3 – 6 months for us to see what effect the stem cells will have on Rohan’s brain and if we see some improvement we will need to plan the next trip to China. The thought of going back to China for a month brings a tear to my eye but at least I will now what I am letting myself in for and have time to be more organized. One of the hardest things whilst there was the fact that they would not let me out with the baby so I was imprisoned for 4 weeks. Everybody else had their days out and had the opportunity to do some sight seeing (when the snow stopped of course) except me so at least if we return there again it will NOT be while there is a blizzard on the way. Also, it will be a very long time before I could face a chinese meal. The menu’s were something that had been designed for Hannibal Lector with dishes such as Blood pot, Fried stomach, Chickens organs, Pig’s tongue, Bullfrog and many more. The food certainly didn’t tickle my taste buds. You never knew what you were eating so I tended to stick to oreo’s, pringles and banana’s which wasn’t the healthiest diet to be on. The food on the plane seemed like a bit of heaven. I am writing this blog at 4.00 a.m. so as you can tell I am a little jet lagged. Will update it every week with news of Rohan’s progress. He is a little fighter and I am positive that he will prove the doctor’s wrong!! Thank you to everybody for helping me through this ordeal with your emails, texts and Skype’s and a huge thank you to my sister Claire in Chicago who took time out of her busy schedule every morning and night to Skype me and listen to be moan for two hours a day. She has the patience of a saint.
1 comment February 20th, 2008
