Rohan’s Congenital Bilateral Perisylvian Syndrome Blog

March 1st, 2008

The family has been back together for almost 2 weeks and it has been nice to get back to a normal life. Lily has been besotted by mama’s return. Rohan continues to feed well although his seizures have got worse and we have had to adjust his medication. Because we were warned in China that this might happen we are less upset than otherwise. Lets hope the stem cells can help his seizures sooner rather than later. This week has been a round of hospital appointments and we have started physio. It is going to be hard waiting to see if Rohan responds and this low-grade stress is very tiring. All our family and friends have been very supportive and this helps recharge our batteries.   

Entry Filed under: congenital bilateral perisylvian syndrome,Uncategorized