October 2008 – Back in China for some more
October 12th, 2008
It has been a long time since we have updated this blog but things have been up and down since my last post. Rohan’s seizures as usual have been very uncontrolled and he has had a G-tube fitted as he has had problems with swallowing liquids. Since our last visit to China, Rohan has been to India for G-therapy and Florida for vasodilation therapy. With all of the therapies he is improving slightly eventhough his seizures are so uncontrolled. He is stronger and his head controlling is improving bit by bit. His ability to see and fix and follow is also improving. So here we are in China again, and as usual we are hopefull that Rohan will see some improvement from the stem cell therapy. We have left Lily behind again which is always so hard and we are missing her already. We arrived yesterday and it does feel strange to be back to see the same nurses and doctors who looked after Rohan on our last trip. Our journey was alot more smooth this time round which made things that much easier. It’s Rohan’s first birthday on Saturday and we are sad that we are celebrating it so far from home and without our gorgeous girl but we will do our best to ensure he has a great day. He will be starting physio therapy tomorrow and will be having his first stem cell transplant on wednesday. Girish will be leaving on Sunday and I will be on my own with Rohan for three weeks. The weather is so much nicer this time so I hope there won’t be any problems with me taking him out for walks etc. When I return home I will be six months pregnant with Christmas and the upcoming birth to look forward to so I just hope that time goes quickly. I will also get to see and speak with Lily via skype once Girish returns home which will be fantastic. I will update this blog weekly and please keep Rohan in your prayers that this trip to China is successful.
Entry Filed under: congenital bilateral perisylvian syndrome,Uncategorized
1 Comment Add your own
1. Lydia and Juli | October 18th, 2008 at 8:43 am
Happy 1st Birthday to Rohan! Lydia says to give him a head massage for her as his birthday present. She still talks about him and how sweet he is. Glad the weather is much better than last trip, hopefully you will be able to get out of the hospital most days. We will keep you and Rohan in our prayers.
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