Archive for November, 2008

One week to go

Hi everybody

We have been here over 3 weeks and Rohan has had 5 stem cell treatments.  We have noticed small positive changes since being here.  He is able to hold is rattles in both hands for more than 30 seconds which is a huge change as before it would be for about 4-5 seconds tops.  His head control continues to improve and he is now just starting to lift his head forward as the therapist brings him from lying flat to sitting position.  This is a great milestone.  I also think that his vision has improved in terms of him looking directly at things when they are put in front of him.  It may not last very long but previously he may not have looked or the response might have been delayed.  I believe that this will continue to improve.

On the seizure front, he still has good and bad days so I don’t think that there are any improvements here yet.  One day he may have 4 and another he may have 8.  Again, I pray to God that this is the main improvement that we see from coming all this way.  Rohan has spent 1/6 of his life in China since he was born so I hope that it has been worth it.  Being away from home and Lily and Girish has been very hard this time and for all of our sakes I hope that this is the final time we will be coming here.  I hope that Rohan shows significant changes when we get home and of course we will continue with all the intensive therapy he has bee getting there.  Rohan has one more treatment on Monday and we hope to leave as early as thusday.  5 days ahead of schedule. Yippeee

Will continue to update this blog and thank you for reading it.

Georgina & Rohan xx

Add comment November 2nd, 2008


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