Daddy left on Sunday so I am here on my lonesome looking after gorgeous bub. Rohan had his second stem cell therapy on Monday and all went well. He will be having his third on Friday which means he will be halfway through. He seems very content with no adverse reactions thank goodness. He is having daily physical therapy which is already improving his muscular function. He is beginning to hold his head up for longer and starting to move his head from side to side. He is also starting to smile more which tugs my heart strings. I am starting to see slight improvements already such as Rohan’s ability to now swallow his saliva rather than gag which makes his feeding much easier. Am missing home very much especially as I saw and spoke to our little girl Lily today on Skype for the first time since our arrival. Thank you to everybody for your comments and support. Will keep you all posted as to how we are doing.
January 30th, 2008
The good news is that Rohan is sailing safely through his treatments- 3rd one due on Friday. I really feel that all your good wishes by comment,txt and email have created a protective bubble around him. Meanwhile all around him we are falling like flies. Dad is back in Uk and mum is still out here but both with bad chests- seems to afflict most of the parents here. Spending time with some of the very motivated parents here has definitely helped us. When our settled 2+2kids world was shattered it was replaced by a world of real fear and uncertainty. There are parents here who have survived in this new world a lot longer than us and it gives us hope and also ideas for other things that may improve Rohan’s quality of life. Infact enough ideas to keep us busy for the forseeable future which is a good thing because we have to keep pushing forward- not only to give us hope but also the feeling that we have some control over us and our sons destiny.
January 30th, 2008
