Feb. 11, 2009 Update

Hello All,

Thanks for your patience in giving us time to observe Ryan for the last few months.  Since we have been home, we have been hoping to see some new changes in Ryan.  Unfortunately, there is nothing new to report that can be attributed to the stem cells.  If there have been changes, they have been to small for anyone to notice.  There are days when he seems to be better than before, and days when he seems no better at all.  However, we still believe that the first trip and treatments resulted in definite improvements.  Ryan continues to hold his head and trunk up much better than before the treatments.  He also continues to be more attentive and maintains longer eye engagement.  In addition, he no longer has the sweating episodes he had previously.  We noticed all of these changes within about 3 months of returning home from the first series of treatments.  Ryan’s year over year spinal x-rays showed that his spine had straightened and his hips were more seated and formed than the previous year.  Our only explanation for the lack of improvements is that Ryan suffered from a significant cold and fever the last week of our time in China.  He had the fever for about a week and we were forced to put him on antibiotics when it moved in to his chest.  Although the doctors told us that it should have no effect on the stem cells, it seems to us that it must have.  We are still debating on returning for another series of treatments this summer.  Good luck to everyone and take care.  Dan, Suzanne, Ryan and Sarah,

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