Shelly’s CIDP Blog

MONDAY–GETTING READY FOR A ROUGH DAY

FOLKS

ELECTRIC WAVE THERAPY AT 9:00———ACUPUNCTURE AT 10:50 AND………..LUMBAR STEM CELL FROM 3:00 P.M. START TO BEING ON MY BACK UNTIL 9:00P.M. DONE WITH WAVE AND ACUPUNCTURE, WAITING FOR STEM CELL……HANDS  AND FEET ARE HURTING….EVIDENTLY I AM A  LITTLE NERVOUS TODAY AS MY BLOOD PRESSURE WAS 151 AFTER NAPPING…WILL LET YOU KNOW RESULTS FROM TODAY, LATER……….

SHELLY

5 comments July 21st, 2008

SATURDAY EVENING-7/19/08

WELL FOLKS, TODAY WAS A PRETTY FULL DAY….ELECTRIC WAVE THERAPY, ACUPUNCTURE, MASSAGE FOR MY ACHING LEGS AND THE TYPHOON PASSED US OVER SO FAR…..TOMORROW, SUNDAY WILL BE A FREE DAY……HOPEFULLY WE CAN GO SHOPPING WITH JOHNNY AND OUR DRIVER….TODAY THEY CHANGED OUR BED LINEN, THE DO THIS ONCE A WEEK…….I ASKED FOR NEW TOWELS AND YOU CAN’T GET ANY….YOU ARE ALLOWED 2 TOWELS AND YOU ARE RESPONSIBLE FOR CLEANING THEM YOURSELF……TOMORROW ON OUR FREE DAY WE WILL BE BUYING SOME TOWELS…….THEY HAVE DECIDED TO GIVE ME MY SECOND LUMBAR STEM CELL (SPINAL) ON MONDAY AND 1ST BIV STEM CELL ON FRIDAY….THEY WILL THEN GIVE US 2 FREE DAYS, SATURDAY AND SUNDAY. I HAVE TO BE TRUTHFUL AND TELL YOU THE FOOD IS NOT THE BEST……TONIGHT WE TRIED SOME EGG AND CHEESE SANDWICHES AND SOME SPAGHETTI……..LET’S NOT GO INTO IT…….WE ARE FOLLOWING ALL THE RULES AND THEY ARE KEEPING CLOSE TABS ON MY DIABETES…………IT HAS BEEN FINE…..I CAN TELL YOU THAT THE 1ST LUMBAR TREATMENT ALONG WITH ALL THE ACUPUNCTURE AND WAVE THERAPY HAVE GIVEN SOME PARTS OF MY BODY A RUDE AWAKENING……MY ARMS AND LEGS HAVE GIVEN ME SOME INCREDIBLE PAIN ESPECIALLY AT NIGHT….TONITE I GET A PILL TO HELP ME SLEEP…….STAY WELL AND I WILLKEEP YOU POSTED AS BESTAS POSSIBLE………..

SHELLY

3 comments July 19th, 2008

LUMBAR STEM CELL OVER-1ST TREATMENT

WELL, THE FIRST STEM CELL TREATMENT IS OVER…THE ACTUAL PAIN OF THE TREATMENT WAS NOT BAD. THEY GAVE ME DIAZOPAN BY IV AND IT PUT ME TO SLEEP. WHEN I WAS AWAKENED IT WAS OVER. FELT A LITTLE PAIN WITH THE INJECTION. THEN, WHEELED BACK TO MY ROOM FOR THE 6 HOUR LAYING ON YOUR BACK WITHOUT RAISING YOUR HEAD. WELL, THIS WASN’T NICE. BOTH ARMS FROM MY FINGERS TO MY ELBOWS STARTED TO HURT, AND I MEAN HURT. MARILYN MY WIFE WORKED ON MASSAGING BOTH ARMS FOR HOURS WITH TEARS IN MY EYES. THANK G-D FOR HER. THEN, HOURS 4 AND 5 THEY LET A MASSEUS MASSAGE ME FOR TWO HOURS. MAJOR PAIN. THEY THEN LET ME RISE AFTER ABOUT 5 HOURS AND 45 MINUTES. MY BACK HURT QUITE A BIT FROM LAYING ON MY BACK, ON THE MATTRESS WITH NO PILLOW. THIS MORNING STARTS WITH THE ELECTRIC WAVE THERAPY AND ACUPUNCTURE AGAIN. MAIN THING, SURVIVED ROUND ONE. I’LL KEEP YOU POSTED.

LOVE

SHELLY

7 comments July 17th, 2008

DINNER MONDAY EVENING

JOHNNY TOOK US TO A “CHINESE RESTAURANT” FOR DINNER……….CLASSY PLACE, BUT………………LIVE SNAKES IN GLASS BOXES THAT YOU PICK FOR DINNER………..NEED I SAY MORE? MARILYN IS OK TODAY……..

6 comments July 15th, 2008