Today was Tylers first stem cell treatment, he was scheduled for 10:15 and as the time approached I got more nervous…but by 10 they hadnt gotten in to put in his port in. Kirshner then told several people that the plane had been delayed so everyone would be off schedule.
They came in finally to put his port in & aksed if i wanted pediatrics to do it since that morning they had tried to draw blood & couldnt find a good vein, so I said yes that might be best ! So Jack our interpretor came with me & a nurse & took me down stairs & in to a part of the hospital that is only for pediatrics. What a shock, ok people please be glad for our hospitals….this one was dark…well first of all they dont use lights in the hospital here in the daylight to conserve energy. There were hundreds of people with kids in there..and this was in the size of an 10 x 10 room. Of course everyone was staring at us AGAIN..they push us right through the crowd & put us as the first one to get the port put in. The Chinese just pretty much step back out of the way.They have this small table that they put the kids on..one on each end & they have a travel pillow they put their leg or arm on to put the port in …NO GLOVES AGAIN…they ask me if I want it in his head or foot so I said foot..she got it in the first time too !!!
We came back up & it was time for his fluids then upstairs for the stem cell !!! We went up in a room with about four other adults that were already hooked up getting their stem cells. Of course Tyler was already agitated from the IV port so was pretty hyper!! As soon as they put the needle in port for the stem cells he got VERY agitated..but now all he has to do is hear a chinese voice & he falls apart because he knows something is coming…there is another little boy here that is doing the same thing before tyler started it too…lol
The IV takes about half an hour or so, so they finally ended up giving him some valium to calm him down…he did well after that. We came back tot he room & he slept forever. He had no headache or fever from it either !!!!
Because he had slept so much all day, guess what !!! yep he was up from 2-4:30 so no sleep again… im getting more & more worn out by the day !!!! He wont have another treatment until Friday for stem cell & that will be his spinal…nervous all over again !!!
He does have acupunture & physical therapy int he morning though so will report on that when were done…
Tami
1 comment July 29th, 2008
