Tyler's SOD Blog

August 10

August 10th, 2008

Today was another lazy day for us.  Tyler, however slept most of the night for the first night since arriving here with some help from everyone keeping him up til 11 pm & benadryl !!!!!!!!!!!!!!!!!!!!

But when i got up today I felt more tired than usual from actually getting some sleep i think.  We layed around most of the day then Ravena & I got a cab & went to the RT Mart to wander around & kill some time.  I needed to get Tylers new favorite drink here which is called Peach Nectar !!  He loves it …it sounds like hummingbird food to me !!  We bought a few groceries and just looked at all the odd products they sale here, many are things we recognize..but with weird names.  Like after shower spray is called something like snake water ???????  i didnt purchase any just by chance…lol….I did get tyler more yogurt, which they consume mass quantities here…but its liquid ???? i have been mixing it in baby rice cereal to thicken it up & he loves it but this afternoon i just poured it in his sippy cup & he drank it up !!  I couldnt find coffee though other than instant, then found a specialty section with a few coffees but it was massively expensive.  So next trip to a mall i will buy some starbucks ground to bring back here.

I did find a certain toy that tyler has latched onto here at the hospital play area, it has a small keyboard & other buttons for various sounds.  One is a little girls head & when pushed plays a chinese childrens song !! He will be bringing that back to school with him to show it off !!!

Tomorrow Shel & Macie head back to Colorado, we will miss them greatly, as they have made our stay here so easy to this point..Shel’s stories & trips out have made our day most times !!!  and Macie is a pure angel…she deserves everything good in life & she will be in my prayers as will all of the children that are here…forever..we have all exchanged emails & I know that we will all be friends for life from what we are all going through with these children.  Joe & Nikki leave as well tomorrow headed back to New Orleans, their daughter Mary Patton is another angel..I cant not describe how much these kids touch your sole being around them & the struggles they are all going through and in the end they are just kids…as i write this with tears in my eyes to see them going through all of these just to have a glimpse at a normal life…so for everyone at home saying prayers for us …add them to your list !!!  I am going to send another post to list who is her with us now & have left…and you will know what amazing people are here !

Tomorrow is stem cell day for Tyler…he should get his treament about 1:30 pm…then be back in the room around 2:30 and then we have to lay flat & still for 4 hrs before we can get up..its hard ..but it has gotten easier…think I will turn in & rest up for tomorrow…

Tonight we also had Corey’s birthday party !! it was so nice with presents & cake..he seemed to have a great time…as did the adults….he turned 3 today !!!

Tami & Tyler

Coreys Birthday !!!

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