August 19th
Today we got up at 4:45 ! Tyler felt we both had had enough sleep i guess…so now he is back asleep as I should be !!! He did okay with his spinal yesterday, he was a little more restless than the past one but still did fine. This morning though about 8 he started getting very agitated & crying so I figured something was up…as he continued to scream & throw himself around as I am watching him he starts pulling his hair !!! ah ha !!! he had a headache !! that is one of the side effects from the stem cell treatment & he hasnt had one until now..most of the other kids have already ……so t hey hook up the IV fluid again to bring even out the cranial pressure & give him some meds by mouth & he is sleeping peacefully !!
I dont think i will get out today again…not sure how long he will sleep & dont want to chance him not feeling well. Its very overcast & smoggy so far today so not much of a nice day to enjoy out anyway !!!
Today Shel & Macie left for home ! they were so excited yet hating to leave all the new found friends they have made ..she has of course offered an open invitation for any of us to come visit in Colorado so we all decided we will do it..all at the same time !!!!!! she would love it !!! well i think i may stretch out for bit as im really exhausted this morning..ive had another close call with vertigo ..which for no one that knows me well…i have it every so often & stress & lack of sleep seem to be a major trigger for it,..so you guessed it the stress & no sleep here has gotten to me..i take bonine & it knocks it out pretty well,.but im down to one pill & dont want to chance our go home day without one…lol….will write more later……
tami & tyler
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